Keeping Community Engagement Central To Rare Disease Research

Keeping Community Engagement Central to Rare Disease Research

Building a Community Engagement Model for Rare Disease: A Community Ambassador Approach

Rare Diseases Clinical Research Network (RDCRN)

Diversifying Research Podcast: Community engagement in sickle cell disease | Episode 7

Imperial College London

Diversity, Equity, Inclusion, Accessibility Webinar: Community Engagement in Translational Research

Rare Diseases Clinical Research Network (RDCRN)

Providing Critical Information to the Rare Disease Community

Engaging the Rare Disease Patient Community in Research

Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement

Connecting Rare Disease Patient Communities and Advocacy Groups

CP-RND ALS Public--Private Partnership Public Forum

Critical Path Institute

HEF 2024 Lessons from the Field Best Practices for Engaging Community Partners

Global Genes - Allies in Rare Disease

Explaining the KHP Rare Disease Network and how to get involved

King's Health Partners AHSC

Central Clinical School participates in Rare Disease Day 2022

Translational Medicine, Monash University

Drug Development for Rare Diseases: A Community Conversation

National Organization for Rare Disorders (NORD)

Luz Claudio: Why science needs community engagement

Community Engagement in Health Research: A Review of Popular Strategies. Sara Ackerman, Ph.D.

UCSF Center for AIDS Prevention Studies (CAPS) & Prevention Research Center (PRC)

Day 1: Using Community Engagement to Build Partnerships to Enhance Research Participation (4K)

WashU Medicine Knight ADRC

Learn About the Rare Disease Community: Meet Mara Gervais

2022 Rare Disease Day - Dr Emily Edwards on Primary Immunodeficiency Disease

Translational Medicine, Monash University

#RareDiseaseDay: Overcoming challenges to patient engagement in the rare disease community